Thursday, January 2, 2014

I'm grateful that I was diagnosed with Celiac Disease.

Photo via flickr
When I was diagnosed with Celiac Disease in the summer of 2009, I was suffering from anemia, constipation, and internal bleeding.  I thought that I might have cancer.  When the physician's assistant told me that it was Celiac Disease, I felt a wave of relief wash over me.  The doctor referred me to the dietitians of St. Elizabeth Hospital.  I already knew them, of course, since my mother started her job as a dietitian at St. E when she was pregnant with me.

Over the last four years, I've struggled and succeeded.  This has totally changed many aspects of my life, and I think about it every day.  But, I think it has lead me down a better path.  It has made me stronger and more aware than before.

A few reasons why I am grateful to be a Celiac...

It made me think about what I eat and drink.
I've never been terribly self-aware.  Food for me in college consisted of nearly all prepackaged convenience foods, lots of soda, lots of cheese, and few vegetables.  After being diagnosed, I turned to prepackaged GF convenience foods, and ate lots of apple with peanut butter.  I gained 60 pounds in a few years.  My husband and I finally had enough (I was pushing 200 lbs and only 5'4"), and we began exercising and cooking from scratch.  Learning to cook gluten-free meals has been so wonderful.  I think that if there were a cure for celiac disease tomorrow, I'd still follow a gluten-free diet.  I've figured out what and how I like to cook, and I'm very proud.  I've gone from eating tons of microwave ramen noodles to making up my own recipes, and I'm not looking back.

It's forced me to face my fears.
I do not like speaking up in public around people I don't know, unless I'm presenting something (I'm a teacher after all, I like to be prepared).  Whenever I eat outside of my house, I have to stand up for myself, ask for appropriate food, or abstain from eating.  This is an ongoing challenge.  I have social anxiety, and I really suffer and fret about this the most.  However, I think I'm getting better.  I like being an advocate when people ask me about Celiac disease or gluten when we're away from food.  But, whenever I have to turn down food at gatherings or meetings and explain the entire GF saga (no, I can't eat white bread, either), I tend to fatigue quickly and clam up.  This year, I want to do better, because I know I will be explaining this for the rest of my life.  Being gluten-free challenges me to deal with my social fears, and it's helping me grow.

I can better empathize with people with other food related diseases and allergies.
I grew up hearing about people with food intolerances and issues, but I always listened with curiosity more than concern. ("Wow, some people can't eat cheese? That sucks.)  I know Celiac Disease is its own beast, but I feel a sense of community when I talk to people who have food allergies, lactose intolerance, diabetes, etc.  Food is integral to our lives in ways we don't notice.  Until your food makes you sick, you probably don't think twice about picking up a piece of homemade whatever from the break-room or reading the label on that gas station snack.  I now know how nice it is to find something you CAN eat at a party (that you didn't make yourself).  I want to continue to reach out to other people with similar issues.  A sense of community and support makes living with food intolerances much easier.

Most people express sympathy or pity when they find out what I can't eat.  But, I don't feel sorry for myself (too often).  I'm glad to live a happy, healthy, gluten-free life.

Wednesday, January 1, 2014

New Project: Gluten-free Dairy-Free Mostly Meatless Cookbook

I will be posting successfully cooked recipes in order to document my kitchen experiments.  In my break from work, I've spent a lot of time in the kitchen.  So much, in fact, that I haven't blogged about anything like I had hoped to.  These are some recipes that I've made over the Christmas holidays:

And I'm going to try and tag what is gluten-free (GF), egg-free (EF), dairy-free (DF), and vegan (V) . Obviously, if you see the V, that means the dish doesn't contain animal products.  Now, I am NOT vegan, and I do cook with honey.  I'll point that out, but you can replace the honey with the vegan sweetener of your choice.

Boudain't Balls GF/V
Baked tofu GF/V
Cornbread GF/V
Curried Cauliflower Corn Soup GF/V
Seaweed Vegetable Soup GF/V
Breakfast oatmeal GF/contains honey
Homemade hummus GF/V
Spicy Smooth Salsa GF/V
French Onion Dip GF/V
Queso GF/V
Avocado Bean Dip GF/V
Spinach Parsley Pesto GF/V
Applesauce Muffins GF/V


Wow, that's a lot of posts to get together.  We'll see.

Happy New Year!

Sunday, December 29, 2013

I'm not raw vegan, but I can't stop watching!

I had a nice GF Christmas.  Lot's of cooking and kitchen gadget gifts.  In my time off, I've been watching lots of vegan and raw vegan YouTube channels.  It's fascinating!  I do love hot food, but watching people make appetizing dishes with only a blender and dehydrator is fun.

As I've said in the past, I can't be a raw vegan since I don't like dates or bananas. :)

My favorites:

Vegan, Not Raw
Make it Vegan, Isa Chandra Moskowitz
Vegan Cooking with Love

Raw Vegan
Raw Vegan, Not Gross, Laura Miller

Monday, December 16, 2013

Butterscotch Chips Have Barley?

One of my go-to holiday recipes is peanut butterscotch haystacks.  I melt Nestle butterscotch morsels in the microwave, add peanut butter and gluten-free pretzels (in lieu of chow mein noodles), then drop them into little piles (haystacks) and refrigerate.  Yesterday, we had a White Elephant gift party for my friends, and my husband happened to read the ingredients to see if they were vegan (my brother-in-law is a proto-vegan), and he point to the words "barley protein" in the ingredients.

He looked it up, and yes, they're not gluten-free.  Pretty sure barley protein IS gluten.

Joy to the gut, I've been poisoning myself for the last four Christmases.

I'm of the celiac variety that I don't get physically sick from eating gluten.  At least that I can detect.  So no vomiting, no diarrhea.  However, I have no way of knowing if I'm ingesting gluten accidentally (I'm looking at you, Starbucks frappuchino!).  I get my antibody levels tested about once a year, and they've been normal so far.  I don't want to have another colonoscopy to check my villi, but that's probably the only way I'll know if there's damage from these little gluten accidents.

My new plan is to make some kind of tiger bark pretzel thing, with GF white chocolate and peanut butter.  I'll let you know.


Wednesday, December 11, 2013

Why aren't you eating?

One of the worst parts of having celiac disease is having to explain to new acquaintances and coworkers.  Holidays are their own special torture.  Not only am I socially awkward, but I have to explain why I just came to sit while everyone else eats.

So, I think that will be my last banquet that I go to without bringing my own food.  At least I didn't cry, because I felt like it.

"Oh, you can eat the rice.."  "You can eat potato salad, right?"

No, I'm sorry.  I have no idea how that food was prepared.  It's probably cross-contaminated or has gluten ingredients.

Happy Holidays.

Tuesday, December 3, 2013

Gluten-Free Point of View

This might be...

brief
informative
personal

recipes
product reviews
anecdotes and accounts
tutorials
food diary

drawings?